Dear NMOs,

Since December 2019 China has been seriously hit by the COVID-19 outbreak with healthcare professionals across the country working very hard to improve the situation. To highlight the importance of this work, The Illness Challenge Foundation from China has started the campaign “300 Million Thanks”. This campaign invites rare disease organizations such as yours to participate by sending support to the Chinese health care professionals working to take care of patients and limit the spread.

They call for everyone - patients, families, friends and doctors to participate in this initiative. IPOPI’s NMO PID China is also an active participate in this campaign and we encourage all our NMOs to show their support.

How to participate:

PID patients and patients with rare diseases from all over the world are invited to participate. Please use your smartphone to record a short (30 seconds max) video without any filters, special effects, or subtitles. Possible script for the video is available below. Send your video to PID China with email: pidcare@163.com. In the email, please indicate the participant’s name, disease/country/affiliated organizations/occupation. They will share the videos on social media platforms in China as well as on Facebook and Twitter. 

Please see a sample video: https://youtu.be/eqjRCivb2Wc

Proposed script to use when recording your video:

• I’m ***,   from*** organzation in ***(country)

   

• Us patients with rare diseases support the 300 Million Thanks Initiative!

   

• Thank you, to the doctors and nurses fighting the COVID-19 outbreak in China!

   

• Thank you to all that work to ensure that primary immunodeficiency patients are kept safe.

   

• We are with you, 300 million rare disease patients!

   

• We are with you, China!

   

Kindly reach out to me or Jessie Qu from PID China (pidcare@163.com) if you have questions.

Best wishes,

Julia

Julia Nordin

NMO Programmes Officer

IPOPI - International Patient Organisation for Primary Immunodeficiencies

Portugal Office:

Av. Aida, Bloco 8, Escritório 821

2765-187 Estoril, Portugal

Tel/Fax: +351 21 407 5720

Email: julia@ipopi.org

IPOPI is a charity registered in the UK - Charity No 1058005

Rocky Bottom, Trerieve

Downderry, Cornwall PL11 3LY, UK

Tel/Fax: +44 1503 250 668

www.ipopi.org     /ipopipid     @ipopi_info